Druidic Dabblings and General Twaddle !!

V8Druid

V8Druid

do it as well as you can,but learn to do it better
I am guessing that they have seen more stones in the gall bladder and want to avoid a further bout!!
I've got loads Shaun - part of my Gaucher's disease - two biggest are 20mm ranging down wards -- I take great and good care of it - in both how I use my body and what I stick in it - have had the 20mm ones since before 2010 when I was first diagnosed with Gaucher's (which explained why I had such a collection ) after my first bout of Pancreatitis!!
I'd've loved to have been without the constant threat, but, as said, been told for years, I needed to keep it :(:mad:
I wouldn't wish Pancreatitis on anyone - the pain level is apparently equivalent to a difficult childbirth !! (and can kill you)
 
D

Diggerdavey

Well-known member
well ......... I'm sat at me desk in front of me screens ......:giggle: (for now - anyway)
managed to get meself let out Friday evening, against the better judgement of both the medics :unsure: and myself (TBH) :rolleyes:.....
but Pam was losing the plot and needed me home --
she'd not driven the car in nigh on 6 months and having not only had to drive me to A&E last Sunday evening with me in a heap in the passenger footwell, had stayed with me 'til they got me onto a ward, early hours of Monday morning and hooked up to a morphine line and a couple of others, she's also been back and forth the rest of the week, doing battle with Hereford's traffic.

They'd been cutting / baling all the fields around us all day Thursday and half the night, with lights shining and flashing across the house and windows and shooting anything that moved out there too ...
she was a bit 'strung out' Friday when she arrived, full of hope I'd be here for the w/end. :(

Had already discussed the situation with the medics and they'd agreed to give me a weekend (ish) 'pass' - if they could get:- all my ob.s stable, bloods where they wanted them, me feeling 'ok', all the paperwork sorted and a bagful of meds/antibiotics/painkillers & morphine to bring home so's I could self medicate and maintain the regime. AND I swore to return next week, (as long as I didn't need to 'tear arse' back before then) :oops:.

Surgeon fella had told me Friday morning I'd got a 'time bomb' lodged in my bile duct between my gall bladder and pancreas in the shape of a stone that'd block my pancreatic duct again if it moved and was booking me in for some form of endoscopic procedure Wednesday - camera in through the nose, navigate my intestines to a point they could enter the billiarly gland, gall bladder and then the bile duct to grab it and extract it, 'fore it got loose and induced pancreatitis for yet another (4th) time.
Reckoned I'd done very well to survive three bouts - might not be so lucky/such a tough ol' bast**d to handle another in quick succession -- so got a 'date', Wednesday morning with him doing his robotic remote camera/manipulator operator bit -- I sincerely hope knows his sh1t!!!

Advantage of being home, aside from having a much calmer, happier wife, is our own larder/freezers/fluid stocks AND hooooome cooking menu, on tap :giggle::love: -- makes for a hugely improved recovery (y) -- been nice to have been able to bring the hospital bed with me though - so comfy/adjustable. :rolleyes:

temps have been a bitch though ... sat in a sun lounger, outside, Friday night 'til gone midnight in 28C ......33C yesterday, dropping to the same 28C for most of the night ... 31C ATM - 28 at 08.00 this morning
three fans follow us around the house with all windows / doors wide open to catch what little breeze there is

'guts' have started to function with reasonable normality again today, with some 'monumental' out puts and the appetite is getting better all the time with whatever I can think of to tempt it into action - makes such a difference instead of looking at some pretty 'limp' presentations to try and tempt you.
And I have caught up on a lot of sleep - albeit spasmodically, but sleep, all the same :giggle::cool:

So - camera job Wednesday ---
long conversations with my Lysosomal Storage Disorders consultant in Cardiff tomorrow -
Hereford's guys have been talking to him a lot this week - they want to take my Gall bladder out -
he's said for years/a decade plus, he can't guarantee it won't affect the efficacy of how me 'hamster juice' works -
suddenly this week, he's changed his story, with Hereford's guys ? o_O:unsure:
He's going to have to convince me --- they can't put it back :oops::(
If he can come up with convincing evidence to corroborate his change of stance -
's next on the list, so'll be a couple more days in Hereford General
IF it's right - it could make a big difference to the way I live/have to live, my life ??? :unsure: --
would love to be able to have a poached egg on toast again :love::love:
loads of folk live happily without the gall bladder (it's an almost, semi-vestigial organ ):rolleyes: --
but emphasis on LIVE - I need my Hamster Juice to work, to do that !!!

Many thanks for all you responses to my phone based efforts, from C3 on Frome ward :giggle: too - helped considerably (y):cool:


very kind offer Bob - Serge has been over to see me several times from Ross and 'brought supplies' :giggle:

LOL -- same old Nokia 635 Gavin - was just a bit more determined :LOL: -- bloody slow though and total lack of facilities :cry:

the only thing I'll need for most of it Dermot, is a long hose and a big bottle of propane to feed the flame wand ..... 's all looking pretty 'scorched earth' already :oops::oops:

appetite is improving hourly Dan ...
Friday's canteen brekky kicked it off - eat where the troops eat, is my philosophy in hospitals -
but, good as it was, it's got a long way to go to beat Pam's cooking ...
awesome 'clone' yesterday morning, here - same again this morning with a nice Panini instead of the toast - spectacular tea last night and looking forward to Fuesselli and meatballs in tommy sauce very shortly - very VERY shortly :giggle::giggle::giggle:

as for the rotary - I assume you mean for the hose reel - may have to wait a little longer - got a few 'more pressing' things to sort first :rolleyes::ROFLMAO:


Now .......... WTF has been making 390 new posts -- 's gonna take me weeks to catch up ???????? o_O:censored::oops:
Best wishes for a successful hospital visit Wednesday and a very speedy recovery. I amongst others enjoy your photo diary and posts 👍🏻
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
Best wishes for a successful hospital visit Wednesday and a very speedy recovery. I amongst others enjoy your photo diary and posts 👍🏻
thankyou Davey ... glad to hear they give someone pleasure :cool:
Never been into a hospital for a 'procedure' before (apart from having all my teeth out at 21 - Gaucher's again!! :rolleyes:) and it is going to be with some trepidation! - but have zero choice :rolleyes:

I've watched and found all of the 'Surgeons at the edge of life' series fascinating and what some of these people manage to achieve is truly staggering, which gives me a reasonable degree of confidence in both the technology and the surgeons' abilities to use it, to extend what was previously impossible to do. The tech they have at their disposal is also spectacular.
 
B

bobthebuilder

Well-known member
any suggestions for a tablet - summat I've been fancying for a while, but have no idea what to look at :unsure:
Good your home ,Mrs is seeing the pre opp man for gall bladder removal on Wednesday,very large stone in said bladder,bought a 40quid tablet off temu ,just for Internet browsing

Seen as you may need your gall bladder,can they laser them?my cousin produces loads goes in every 6 months gets the laser treatment to.explode said stones
 
6

6feetdown

Well-known member
well ......... I'm sat at me desk in front of me screens ......:giggle: (for now - anyway)
managed to get meself let out Friday evening, against the better judgement of both the medics :unsure: and myself (TBH) :rolleyes:.....
but Pam was losing the plot and needed me home --
she'd not driven the car in nigh on 6 months and having not only had to drive me to A&E last Sunday evening with me in a heap in the passenger footwell, had stayed with me 'til they got me onto a ward, early hours of Monday morning and hooked up to a morphine line and a couple of others, she's also been back and forth the rest of the week, doing battle with Hereford's traffic.

They'd been cutting / baling all the fields around us all day Thursday and half the night, with lights shining and flashing across the house and windows and shooting anything that moved out there too ...
she was a bit 'strung out' Friday when she arrived, full of hope I'd be here for the w/end. :(

Had already discussed the situation with the medics and they'd agreed to give me a weekend (ish) 'pass' - if they could get:- all my ob.s stable, bloods where they wanted them, me feeling 'ok', all the paperwork sorted and a bagful of meds/antibiotics/painkillers & morphine to bring home so's I could self medicate and maintain the regime. AND I swore to return next week, (as long as I didn't need to 'tear arse' back before then) :oops:.

Surgeon fella had told me Friday morning I'd got a 'time bomb' lodged in my bile duct between my gall bladder and pancreas in the shape of a stone that'd block my pancreatic duct again if it moved and was booking me in for some form of endoscopic procedure Wednesday - camera in through the nose, navigate my intestines to a point they could enter the billiarly gland, gall bladder and then the bile duct to grab it and extract it, 'fore it got loose and induced pancreatitis for yet another (4th) time.
Reckoned I'd done very well to survive three bouts - might not be so lucky/such a tough ol' bast**d to handle another in quick succession -- so got a 'date', Wednesday morning with him doing his robotic remote camera/manipulator operator bit -- I sincerely hope knows his sh1t!!!

Advantage of being home, aside from having a much calmer, happier wife, is our own larder/freezers/fluid stocks AND hooooome cooking menu, on tap :giggle::love: -- makes for a hugely improved recovery (y) -- been nice to have been able to bring the hospital bed with me though - so comfy/adjustable. :rolleyes:

temps have been a bitch though ... sat in a sun lounger, outside, Friday night 'til gone midnight in 28C ......33C yesterday, dropping to the same 28C for most of the night ... 31C ATM - 28 at 08.00 this morning
three fans follow us around the house with all windows / doors wide open to catch what little breeze there is

'guts' have started to function with reasonable normality again today, with some 'monumental' out puts and the appetite is getting better all the time with whatever I can think of to tempt it into action - makes such a difference instead of looking at some pretty 'limp' presentations to try and tempt you.
And I have caught up on a lot of sleep - albeit spasmodically, but sleep, all the same :giggle::cool:

So - camera job Wednesday ---
long conversations with my Lysosomal Storage Disorders consultant in Cardiff tomorrow -
Hereford's guys have been talking to him a lot this week - they want to take my Gall bladder out -
he's said for years/a decade plus, he can't guarantee it won't affect the efficacy of how me 'hamster juice' works -
suddenly this week, he's changed his story, with Hereford's guys ? o_O:unsure:
He's going to have to convince me --- they can't put it back :oops::(
If he can come up with convincing evidence to corroborate his change of stance -
's next on the list, so'll be a couple more days in Hereford General
IF it's right - it could make a big difference to the way I live/have to live, my life ??? :unsure: --
would love to be able to have a poached egg on toast again :love::love:
loads of folk live happily without the gall bladder (it's an almost, semi-vestigial organ ):rolleyes: --
but emphasis on LIVE - I need my Hamster Juice to work, to do that !!!

Many thanks for all you responses to my phone based efforts, from C3 on Frome ward :giggle: too - helped considerably (y):cool:


very kind offer Bob - Serge has been over to see me several times from Ross and 'brought supplies' :giggle:

LOL -- same old Nokia 635 Gavin - was just a bit more determined :LOL: -- bloody slow though and total lack of facilities :cry:

the only thing I'll need for most of it Dermot, is a long hose and a big bottle of propane to feed the flame wand ..... 's all looking pretty 'scorched earth' already :oops::oops:

appetite is improving hourly Dan ...
Friday's canteen brekky kicked it off - eat where the troops eat, is my philosophy in hospitals -
but, good as it was, it's got a long way to go to beat Pam's cooking ...
awesome 'clone' yesterday morning, here - same again this morning with a nice Panini instead of the toast - spectacular tea last night and looking forward to Fuesselli and meatballs in tommy sauce very shortly - very VERY shortly :giggle::giggle::giggle:

as for the rotary - I assume you mean for the hose reel - may have to wait a little longer - got a few 'more pressing' things to sort first :rolleyes::ROFLMAO:


Now .......... WTF has been making 390 new posts -- 's gonna take me weeks to catch up ???????? o_O:censored::oops:
Glad your feeling a little better. Should be easier tonight temp has dropped and a bit of a breeze
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
Good your home ,Mrs is seeing the pre opp man for gall bladder removal on Wednesday,very large stone in said bladder,bought a 40quid tablet off temu ,just for Internet browsing

Seen as you may need your gall bladder,can they laser them?my cousin produces loads goes in every 6 months gets the laser treatment to.explode said stones
cheers Bob
that'll almost certainly be kidney or bladder stones - breaking up gall stones leads to them blocking the bile/pancreatic ducts and pancreatitis - they just don't do it
what was the tablet Bob - s' all I'd want one for - mobile net browsing
good luck to the missus - Wales or England NHS.

any future issues I get I will be crossing the border to Hereford's A&E ... different planet - book in and seen promptly
takes 25 mins of touch screens to get through the door in the Grange , Cwmbran
should never have shut Nevill Hall's A&E :mad::mad:
 
M

Monkeybusiness

Well-known member
Glad you are home Graham, that’s the best way to mend!
You’ve obviously got a huge amount to consider - I hope your consultant is ready to receive the grilling of his life (quite rightly from my opinion)!!!
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
Glad you are home Graham, that’s the best way to mend!
You’ve obviously got a huge amount to consider - I hope your consultant is ready to receive the grilling of his life (quite rightly from my opinion)!!!
yeh - I hope he's not too busy in the morning :unsure::censored: :rolleyes:

not seen him in well over 18 months - have had 3 cancelled appointments and still waiting for a date for the last cancellation's replacement - from January :mad:
also short on 3 or possibly 4 MRI appointments never received/cancelled, to supposedly monitor the state of my gall bladder issues and spleenic volume control (what the 'Hamster juice' deals with).
AND
Ditto the monitoring of the Scwanoma tumour they've discovered on the Conus at the base of my spine (WTF they can't MRI them both simultaneously [bit of departmental co-operation:rolleyes:] is beyond me???)🤬🤬

NHS Wales is a bloody disgrace :mad:🤬:cry::cry:


At least I get edible food at home :rolleyes:(y)
time for some zeds - not feeling the greatest tonight :mad:
 
Storrsy

Storrsy

Well-known member
Blimey. Sounds like you've been through the wringer somewhat healthwise. Fair play to you for keeping positive with it all as expect it would be too easy to otherwise get dragged down by it all. Sure keeping going with all your projects etc helps focus the mind elsewhere👍
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
Blimey. Sounds like you've been through the wringer somewhat healthwise. Fair play to you for keeping positive with it all as expect it would be too easy to otherwise get dragged down by it all. Sure keeping going with all your projects etc helps focus the mind elsewhere👍
yeh it's been uphill at times ..... 'the Dabblings' do tend to help keep me sane :rolleyes:;)
 
C

charlie2

Well-known member
any suggestions for a tablet - summat I've been fancying for a while, but have no idea what to look at :unsure:
i use an i pad and it works very well for me all through wifi from the broadband. do use desktop as well i pad probably more convenient as can take it anywhere in house or garden and works well for me.
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
been trying to get some sense all day from the surgeon's PA in Hereford as to whether I have to 'present' on Wed.s ??
she can see all my notes and referral for an ERCP ( https://en.wikipedia.org/wiki/Endoscopic_retrograde_cholangiopancreatography ), but not heard back, by my 3rd chase at 4.15 today :(
hopefully get some news in the morning :unsure:

Consultant in Cardiff's not returned my calls, but spoken to his lead clinical nurse (sidekick) and she's aware I need some urgent conversations - have met her on numerous occasions, know her well and is my main point of contact. see what tomorrow brings?

more concerned about sorting the ERCP atm :rolleyes: ... the Gall bladder is a little way down the line in comparison ;)

Had to Tramadol the pain last night :mad:
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
Only just caught up with this thread, sounds like a proper rough time mate, wishing you all the best.
To be fair you’re clearly a resilient bugger, so no doubt you’ll be back at it no time.
cheers Simon ... can't just crawl into a corner :rolleyes:
Might take me a while to 'come back' from this episode ... :mad:
I want to be here to see Clara's 21st though - in 12 years time :giggle:
Be nice to see Harper's too --- but that might be pushing it - she's not 4 yet :oops::unsure:

and got a few things I'd like to do yet (y)
 
V8Druid

V8Druid

do it as well as you can,but learn to do it better
been trying to get some sense all day from the surgeon's PA in Hereford as to whether I have to 'present' on Wed.s ??
she can see all my notes and referral for an ERCP ( https://en.wikipedia.org/wiki/Endoscopic_retrograde_cholangiopancreatography ), but not heard back, by my 3rd chase at 4.15 today :(
hopefully get some news in the morning :unsure:

Consultant in Cardiff's not returned my calls, but spoken to his lead clinical nurse (sidekick) and she's aware I need some urgent conversations - have met her on numerous occasions, know her well and is my main point of contact. see what tomorrow brings?

more concerned about sorting the ERCP atm :rolleyes: ... the Gall bladder is a little way down the line in comparison ;)

Had to Tramadol the pain last night :mad:
so ... I ain't gonna be getting my ERCP today ....
long conversation with Danielle - the PA - yesterday afternoon.
they've all had a conflab about me and decided that as they'd gotten all my Ob.s and bloods, etc., so stable, Friday, they're gonna 'suck it and see' for a week, or so and get me back in for a.n.other MRI by the end of the month, then go from there - ERCP or whatever is needed. :rolleyes:
Still now't from the fella in Cardiff - biding my time on that one now -
Might seek a second opinion on that front, from Professor Ahtul Metta, in the Royal Free, Hampstead, who taught him all he knows (saw him first, in 2011, before getting taken on by Cardiff's LSDU).

Would've been nice to have had a 'firmer' resolution, ATM .. but I do at least have some sort of plan to go forward with.
Just gotta recover for a while - try and get back to where I was -- and NOT have any more 'episodes' - some careful 'body management' for a while - no 'jumping about' ;) - 'tis starting to show the mileage :ROFLMAO:
 
Top