V8Druid
do it as well as you can,but learn to do it better
did a huge amount of research on it @Giles ....Random question but when the doctors prescribed your special juice did you resist it? Question it, Facebook study whats in it? Etc or just accept it as the what the doctor wanted to give you to get you well again?
iknow some guys who are anti vaxers all these Facebook posts about stuff etc yet this lad will happily sort or smoke any illegal drug he can get his hands on with no question to what’s in it or from where it came. Seems a strange irony.
there is not a lot anywhere about Gaucher's as it is so rare and read all i could - also joined the Gaucher's association - they approached me - who have as vast as possible database on the disease ...
my 'hamster juice' isn't a drug, per se, but an enzyme that my body isn't able to produce, beta-glucosidase, as my chromosomes are missing the gene responsible for its production.
As for "FB study"
you have to go to medical journals and data bases to find any real info. on it.
these are a few articles
https://scholar.google.co.uk/scholar?q=beta+glucosidase+gaucher&hl=en&as_sdt=0&as_vis=1&oi=scholart
you need to learn a whole new vocabulary too
No i didn't just accept it blindly ... I was very gen.-ed up on it when I went to see the top man in the country on Gaucher's in The Royal Free in Hampstead, London, Professor Atul Mehtta (for a second opinion).
I'd had months to study it, between the initial tentative diagnosis, getting fully tested and progressing on from there, with the consultants in the LSDU in the heath in Cardiff ....
took me 13 mths fight to get the treatment funded. It was the only treatment for it then and without it it's terminal, eventually. (Even had lengthy correspondence with Genzyme, in Cambridge, Mass., USA who make the Cerezyme I am treated with)
There has been a.n.other developed since, which I tried end of '19, early 20, but was taken off it, when I ended up in hospital in Feb. '20 with pancreatitis again ..
personally I'm sure that wasn't the issue, but as a precaution was put back on the established regime that had been working fine for 8 years (with the odd tweak) and am happy to stick with what works.
so no .. I was fully informed about what I was doing
As for your 'smack head' .... it speaks volumes of his (and other's) mentality when they will blindly buy any old sh1t from complete strangers and shove it into their bodies, without a second thought ..... amazes me that there isn't a pandemic of drug induced deaths ... might as well put a gun to their heads with one chamber loaded